Useful links for Public and Patient Information Providers
- NHS library and knowledge services (England) and the Health Education England Library and Knowledge Services Leads
- HLISD – Find local NHS library and knowledge services
- Health Libraries Group (HLG) – part of CILIP
- Knowledge for Healthcare (KfH) – a development framework for NHS library and knowledge services in England. The HEE LKS Leads have developed an implementation plan in conjunction with the HEE appointed Programme Lead. Please go here for updates on the KfH programme. You can also view the KfH blog and the work of the Public and Patients Task & Finish Group. #HEELKS
- Health Education England (HEE) Library and Knowledge Services
- Thames Valley and Wessex have produced: NHS Library Knowledge Services Guidelines for Handling Enquiries from Patients and the Public
- CILIP’s Public and mobile libraries special interest group
- Society of Chief Librarians (SCL) Universal Health Offer – This is a strategy which expresses the public library contribution to the positive health and well-being of local communities.
- Following on from the SCL National Health Offer – this gives local links as well as national health information. http://information4living.org.uk/ (some links are broken)
- The Health and Wellbeing Benefits of Public Libraries – research commissioned by the Arts Council has quantified the economic value of benefits to health and wellbeing contributed by public libraries.
- Libraries shaping the future: good practice toolkit – show how libraries as a statutory service and a core part of community hubs, contribute to local and national priorities
- Reading Well Books on Prescription – and a case study for BoP
- Bookmark your Library – provided by The Combined Regions, The Arts Council England, WorldCat.org from OCLC, The Society of Chief Librarians, and The Reading Agency. To help promote the services of libraries around the country.
- Transcript from #ukmedlibs Twitter chat on Public library / health library partnership on 19th Aug 2015
- Reading for pleasure builds empathy and improves wellbeing, research from The Reading Agency.
- Carnegie UK Trust have published four new databases of examples that show public libraries’ impact on four policy areas: economic, education, culture and society and how libraries contribute to the wellbeing of individuals and communities.
- National Literacy Trust
- National Literacy Trust Hubs: Understanding the role of literacy in public health – This report explains why literacy skills should be part of public health strategies and showcases the work of the National Literacy Trust Hubs in this area.
- The Health Literacy Place – NHS Education for Scotland have case studies, tools, training and resources.
- The Health Foundation’s online resource centre for Person-centred Care has added new pages on health literacy, designed to provide a simple guide to the key elements.
- Information literacy in the Health Sector
- Reading Agency – Mood Boosting Books, Books on Prescription, Summer Reading Challenge, Quick Reads, Reading Groups, work with libraries.
- Read Well – free resources and storytellers for children in hospital
Quality of Information
- The Information Standard – a certification programme for all organisations producing evidence-based health and care information for the public.
- Accessible Information Standard – briefing for health librarians and knowledge service managers and includes a Resources page with useful training resources etc.
- Making the Case for Information – PIF’s report on the evidence for investing in high quality health information for patients and the public
- DISCERN – a brief questionnaire which provides users with a valid and reliable way of assessing the quality of written information on treatment choices for a health problem.
Other Useful Links
- Patient Information Forum (PIF) – the UK’s largest membership organisation for people working in health information. You can download the Case for Information report, Quick Guides and resources from the Toolkit completely FREE here: http://www.pifonline.org.uk/pif-guidesreports/. Other PIF Guides now FREE to download –
- Patient engagement hub for pharmacy teams – The Royal Pharmaceutical Society has launched a Patient engagement hub to encourage pharmacy teams to engage more with patients, carers and the public. The hub is a collection of resources that have already been developed and used by pharmacy teams to speak directly to patients, carers and the public. Additional link: RPS press release
- Making Every Contact Count (MECC) – a suite of resources and tools to support the public health campaign aimed at staff across the sectors
- Coalition for Collaborative Care – brings together people, including people with long-term conditions, and organisations from across the health, social care and voluntary sectors.
- NHS Improving Quality’s Knowledge & Intelligence team bring the latest evidence in health and social care to you quickly and with minimal effort in the Better Knowledge, Better Care RSS Package . The topics NHS IQ have developed RSS files for span the Five Year Forward View, NHS Outcomes Framework, Francis Report and a generic file too of what they hope you agree are ‘Useful Resources.’ Alongside the package is a made-to-measure support designed with input from staff across the system to make each step of the way in getting up to speed as seamless as possible.
- DH Health and Social Care Publications Orderline – free leaflets and posters etc. for the public
- Health Awareness Events Calendar and Ideas for holding a health event and core resources on the HEE West Midlands website
- Good Things Foundation (formerly Tinder Foundation) – a charity that supports digitally and socially excluded people to improve their lives through digital
- The Patient Experience Library, an overview of the UK’s combined knowledge of patient experience.
Discussion lists / Social media
- HP-Resources – Discussion List for Health Promotion Libraries and Resource Services – This list is for staff from NHS Health Promotion Library and Resource Centres to share information, good practice and the availability of new resources, and to collaborate with colleagues locally and nationally.
- LIS-PUBLICHEALTH – a new discussion list for UK knowledge, library and information professionals working in Public Health; to enable members to share knowledge, learning and experience
- Bibliotherapy Discussion Group– A mailing list for anyone interested in the links between reading fiction and non-fiction and health. Bibliotherapy, including Books on Prescription, reading groups, self-help etc.
- CHAIN – Contact, Help, Advice and Information Network – is an online international network for people working in health and social care. For more information on CHAIN and joining the network please visit website.
- Health Information Newsletters (monthly) – aimed at staff who provide health information to the public
- Twitter – Follow the Patients & Public Information Group for KfH on Twitter – @K4H_PPI or follow #HEELKS thread for all discussions around HEE Library Knowledge Services.
Quality Health Information Resources for the Public
Your Trust may have a list of patient information leaflets which should be used first. Here is a list of recommended websites for signposting members of the public to:
- NHS.UK – This site is committed to providing trustworthy information and guidance on all aspects of health and healthcare. NHS.UK ensures its content is evidence-based and includes the best scientific knowledge available. Includes health, well-being and social care information and local services and support.
- Patient – A trusted source of information for both patients and health professionals nationwide. The site contains over 4000 health information leaflets, a wellbeing centre, a free health check and discussion forums.
- Information Standard members – All organisations on this list have been accredited by the Information Standard for producing evidence-based health and care information for the public.
- healthtalk.org – Find information and support for a range of health issues from seeing and hearing people’s real life experiences. Thousands of people have shared their experiences on film to help you understand what it’s really like to have a health condition such as breast cancer or arthritis.
- Easy Health – health information in easy read and other accessible formats
- Contact a Family – Information and support on many rare disorders written by doctors.
- UpToDate – Free public access to Beyond the Basics patient information articles written and reviewed by medical professionals.
- Gov.uk – To find government services and information including benefits, council services, policies, employment etc.
- Lab Tests Online – Information to help patients understand the many clinical laboratory tests that are used in diagnosis, monitoring and treatment of disease.
- Health Tools – NHS Choices has a selection of health apps, podcasts etc. and Channel 4 has some Health Checks online tests